The hEDS First Steps Program
A calm, supportive place to land after your hEDS diagnosis
If you’ve recently been diagnosed with hEDS and feel unsure what to do next, this is for you.
Getting an hEDS diagnosis often comes after a long, confusing journey. Many people spend years being dismissed, misdiagnosed, or told their symptoms are “normal,” only to finally receive a diagnosis with very little explanation or guidance.
You may be feeling:
relief that there’s finally a name for what you’ve experienced
confusion about what the diagnosis actually means
fear about making symptoms worse
overwhelmed by conflicting information online
unsure where to begin
This program exists for that exact moment.
What’s included
When you join, you receive full access to:
Welcome + Orientation
A calm place to land and understand how to use the programWeek 1: Understanding Your Diagnosis (Without Spiraling)
Make sense of hEDS in a way that reduces fearWeek 2: What to Pause, Modify, or Let Go Of
Learn how to reduce harm without over-restricting your lifeWeek 3: What Is Safe to Start
Rebuild trust with movement and activityWeek 4: Fatigue, Flares, and the Nervous System
A deep dive into why fatigue is so common and how to support your systemWeek 5: Creating Personal Guardrails
Build flexible boundaries that protect your energy and reduce overwhelmWeek 6: Moving Forward With Confidence
Integrate what you’ve learned and plan next steps without fearQuick Tools Page
Simple tools to use during flares, overwhelm, or uncertainty“Return Here When…” Guide
Help finding exactly what you need, when you need it
All content is written, with optional short audio reflections.
What this program is…
The hEDS First Steps Program is a self-paced, written-first, supportive guide for adults who have been recently diagnosed with hypermobile Ehlers-Danlos syndrome.
It is designed to help you:
understand your diagnosis without spiraling
reduce fear and confusion
learn what to pause, what’s safe to start, and how to support your body
understand fatigue, flares, and the nervous system
build personal guardrails that protect your energy and stability
move forward with more confidence and less self-doubt
There are no live calls, no deadlines, and no pressure to keep up.
You move at your own pace, return when you need to, and take what’s useful.
What makes this different…
This is not a generic course.
It is not a list of rules or exercises.
It is not about fixing your body.
This program was created to fill the gap between diagnosis and real-world support.
It is:
grounded in lived experience and current understanding of hEDS
nervous-system–aware and non-alarmist
focused on safety, clarity, and sustainability
designed to reduce decision fatigue, not add to it
Most importantly, it meets you where you are.
Who this program is for…
This program is for you if:
you’ve been recently diagnosed with hEDS
you feel overwhelmed or unsure what’s safe
you want guidance that feels calm and grounded
you’re tired of conflicting advice
you want to understand your body without fear
Who this program is not for…
This program may not be a good fit if:
you’re looking for medical treatment or individualized clinical care
you want a rigid plan or one-size-fits-all rules
you prefer live calls or group interaction
This is an educational and supportive program, not medical advice.
How it works
Full access immediately after purchase
Self-paced, no deadlines
Accessible anytime
Return to it whenever you need
You do not need to complete it in order or all at once.
A note about pace and pressure
You do not need to be ready to “do more” to join this program.
You can:
read slowly
skip around
pause for weeks
come back during flares
This program is here to support you, not demand anything from you.
Gentle disclaimer
This program is for educational purposes only and does not replace care from a licensed medical provider. Always listen to your body and consult appropriate professionals when needed.
Investment
The hEDS First Steps Program
$77 (one-time payment)
You receive lifetime access to all current content.
Ready to begin?
If you’re looking for a calm, supportive place to land after diagnosis, you’re welcome here.